After
four days in Albemarle Hospital, and 10 days in Children
of the King's Daughters in Norfolk, Benjamin was sent
home. The chief neurologist told Ann Hughes that her
son had cerebral palsy: a catchall phrase meaning that
Benjamin's brain didn't't work right. He told the family
that Benjamin might one day be able to walk, but that
he would never speak, never play ball, and would most
probably die very early in life because his brain could
not send the right signals to his body to let him exercise.
He would be susceptible to pneumonia and other diseases.
He leveled with her.
Ann, a retired teacher, went to work.
She found an institute in Philadelphia with a program
that held out some hope. She learned the basic techniques
of "patterning" and "masking": doing things over and
over until Ben's mind could connect with the muscles.
Patterning would have to be done fifteen times a day
for five minutes at a time, while masking would be taught
every seven minutes for sixty seconds. These two techniques
would have to be done in unison sixteen hours a day
for three years. Ann learned that she would need 250
volunteers a week to act as trainers for Ben.
Ann spoke
in her church, the COA nursing school, and at the Coast
Guard Base. The newspaper wrote a small article.
The Hughes phone started ringing: strangers volunteering
to exercise Ben. The Hughes family turned their living
room into a waiting/training room. Every week those
250 helpers came through the house. A waiting list
was established to replace those who had to drop out.
After three years the number of people
needed diminished, and the hard work began. Volunteers
spent longer with Ben, doing more difficult things.
Benjamin learned to crawl by following someone through
a box 600 times a day. He learned to run by running
up and down Sheep Harney Auditorium aisles. He grew
strong.
He
went to school, with the other kids: a shorter school
day with intense tuition at home. He graduated from
high school, competed at the Special Olympics, and was
ringmaster for the day at a circus. He became known
and accepted within the community.
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